For Christmas this year, I would like to put many presents under your tree. There is so much that you deserve.
I would give you a box wrapped in bright red paper and tied with the big gold bow. In that box there would be strength. Strength so that you could continue advocating for your child to have the same opportunities as other children. Strength to sit through one more doctors appointment where the doctors are just not quite sure what the appropriate diagnosis is.
There would also be a big box adorned with silver bells and filled with patience. Patience for all those evenings when your other children want you to help them with homework but you can’t stop what you’re doing. Patience that allows you to listen when other moms tell you how hard it is to carpool their child to so many different sports and birthday parties as you seek to find just one playmate for your child.
Another box would be tightly bound with shimmering emerald paper and inside that box would be hope. Hope that would see you through another day of watching other children on the playground run and jump and skip while longing for a time that your child will walk. Hope that enables you to wait for a teacher who will hopefully understand what your child CAN do.
A large gift bag tied with scarlet strings would be filled to the brim with wisdom. Wisdom for you to understand how the new diet or medicine works in your child’s system. Wisdom to respond to the ridiculous questions that people ask you about why your child seems different.
Wisdom to complete forms and look at research. Wisdom to budget an already stretched bank account.
The biggest box would be decorated with snowflakes and inside you would find an XL portion of resilience. Resilience to bounce back after setbacks. Resilience to smile after stares. Resilience to do the same thing over and over, day after day.
You would find an enormous red and white stocking hanging by your chimney stuffed with joy. Joy for little steps that are really huge milestones. Joy for moments that allow you to feel cared for and understood. Joy in knowing that you have truly been blessed by the love of a very special child.